FEBRUARY 2026 EDITION

Editorial

We are delighted to announce the success of our crowdfunding campaign to support the publication of the book “My Skin Story,” launched in December 2025. The €15,000 goal has been exceeded, thanks to the mobilization of a large community of supporters. This milestone marks a first achievement for an artistic and charitable project aimed at raising public awareness of rare skin diseases. We thank everyone who helped us reach our goal. 

The year 2026 will be full of new projects: 

 – The 3rd World Congress on Rare Skin Diseases (WCRSD) 2026 will be held from July 1st to 3rd at the Palais des Congrès in Versailles. 

 – The 2026 drawing contest began on February 2nd, and the exhibition of the winners of the art contest 2025 will take place at the end of February at the IMAGINE Institute.

Therapeutics in Dermatology

Updated chapters

One chapter has been updated (only in French) for healthcare professionals, on the website Therapeutics in Dermatology:

• Vitiligo

More chapters to be updated soon!

SPIN

FREE E-LEARNING PROGRAMMES

We are back for our 6th edition!  

We would like to thank warmly all the people, who have contributed voluntarily to this activity since 2021.

What’s on the menu this year?

SPIN Fundamentals 2026: for healthcare professionals new to the field of chronic inflammatory skin diseases

• 8 talks from sessions of SPIN2025 congress, available for 1 year.

• Topics preview: «  Precision medicine approaches for psoriasis », « Microbiome », « Treatment options in Vitiligo », «  Alopecia Areata, what we’ve learned from clinical trial » and more….

• Launch this month! 

• Register by clicking on the picture below👇🏼 

SPIN World Tour 2026: for dermatologists & scientists specialised in chronic inflammatory skin diseases                                                                                                 

4webinars (1 hr each) accredited by UEMS.

Replays available on demand for 1 year.

Accreditation valid until 6 months post live event.

Here is the program:

• “Where are we with regards to JAK inhibitors in cutaneous IMIDs?” – May 7th – Coordinator Brett King (USA)

• “Genital manifestations of IMIDs” – April – Coordinator George-Sorin Tiplica (Romania)

• “How does “gender” affect treatment decisions in cutaneous IMIDs”- September/October – Coordinator Julia-Tatjana Maul (Switzerland)

• “IMIDs in Skin of Color” – November/December – Coordinator Fatimata Ly (Senegal)

Do not forget it is still possible to access the 2025 trainings!

https://www.spindermatology.org/knowledge-center

Rare Skin Diseases Network

 Participate in the 2026 edition: MY SKIN, MY STORY

Whatever your age: send your drawing before April 15th…

You have until April 15th to share with us your most beautiful drawings on the MY SKIN, MY STORY theme. Find out more: https://thestoryofmyskin.org/

The exhibition of drawings by the winners of the 2025 competition will open on February 27th at the IMAGINE Institute of Necker Hospital. Come and discover it!

2026 World Congress on Rare Skin Disorders

The René Touraine Foundation, in partnership with ERN-Skin, is organizing the 3rd World Congress on Rare Skin Diseases from July 1st to 3rd, 2026, at the Palais des Congrès in Versailles. 

Registration is now open. Take advantage of the early bird rate until February 28th. Register now – we look forward to seeing you!

Partnership with the Fondation Française de l’Ordre de Malte

A partnership agreement has just been signed between the Fondation René Touraine and the Fondation Française de l’ordre de Malte. This agreement will enable the establishment of a treatment room for children suffering from severe genodermatoses and serious burns at Al Azhar University Hospital in New Damietta, Egypt. The partnership will also provide training for healthcare staff. This center will serve as the national coordinating center for the treatment of epidermolysis bullosa in Egypt.