February 20th, 2026 in Rome, Italy

We are pleased to invite you to “Pelle fragile, forti nella vita”, a special gathering organized on rare disease day dedicated to people living with Epidermolysis Bullosa (EB), their families, and patient associations. A day of meeting, listening and sharing and a great opportunity to be together, share stories and build bonds.

Please find below the main details:

• Date: February 28th, 2026
• Time: 10:30 am CET.
• Location: Auditorium Valerio Nobili Ospedale Pediatrico Bambino Gesù Viale Baldelli 38, Rome, Italy

Registration is free but mandatory, please contact lavinia.serra@opbg.net by February the 20th the latest.